Events

The 21 Club Presents : The Indium Corporation & Macartney Family Foundation Speaker Series

About

    Dr. Stein      

Dr. David Stein is the founder of New England Neurodevelpment, a pediatric psychology practice in the greater Boston area of Massachusetts.  He is the author of Supporting Positive Behavior in Children and Teens with Down Syndrome: The respond but don't react method, published by Woodbine House in 2016.  Dr. Stein has served as Co-Director of the Down Syndrome Program at Boston Children’s Hospital, a pediatric psychologist within the Division of Developmental Medicine at Boston Children's, and an instructor at Harvard Medical School through 2016. Dr. Stein's clinical work is focused on neuropsychological testing, behavior therapy, and parent training with children who have neurodevelopmental disorders.  Dr. Stein's research is focused on accurate phenotyping of complex and comorbid neurodevelopmental conditions, factors affecting long-term outcomes, and quality improvement. Dr. Stein is a native of Boston who began working with children with Down syndrome during his own childhood, volunteering with a local advocacy group. He completed his bachelor's degree with high honors at Tufts University , his doctorate in psychology at William James College, his internship at Harvard Medical School & The Cambridge Hospital, and his post-doctoral fellowship at Harvard Medical School & Boston Children's Hospital.    
 

 

 

 

Friday, September 27, 2019

 Dr. David Stein 

"Supporting Positive Behavior in People With Down Syndrome"

@ Delta Hotels By Mariott

9:30am - 2pm

Join us Friday, September 27th for a workshop on behavior and Down syndrome. Author of the popular book, Supporting Positive Behavior in Children and Teens with Down Syndrome: The Respond but Don't React Method, Dr. David Stein of Boston will be in Utica to present the basic neuroscience of Down syndrome, and how this informs effective behavior management.

Workshop attendees will leave equipped with practical strategies to immediately employ at home or in school. Broad application of Dr. Stein's approach can apply to many children with special needs, and not just those with Down Syndrome. All professionals, parents, and friends welcome.

 

 

 

 

The 21 Club thanks the Indium Corporation & Macartney Family Foundation for their sponsorship of our 2019-2020 educational speakers.  Their support makes it possible for us to bring the nation's best experts in topics of Down syndrome right here to Utica, New York for our community to learn from.

Find out more about their work HERE.

Sunday, September 29, 2019

 Buddy Walk

Hanna Park- Utica  10:30am-1:00pm

 

Join us for the Buddy Walk on Sunday, September 29, 2019.  This event to kick off Down Syndrome Awareness Month is sponsored by our friends at Upstate Cerebral Palsy.   The Buddy Walk is free to participants.  It is a one-mile awareness event that promotes advocacy, inclusion and acceptance of individuals with Down syndrome.  Hope to see you there!

 

Thursday, October 3, 2019

 ladies Night

Paint & Sip

Swifty's  Restaurant and Pub- 257 Genesee  Street - Utica  6:00pm - 8:00pm

 

Join us at 6pm on Thursday, October 3rd at Swifty’s for our Ladies Night Paint & Sip. Kathy Van Horne will lead us in painting the ornament pictured. $25 covers the cost of supplies.  The 21 Club will provide appetizers.  Swifty’s is offering us $5 house wines. If you love someone with Down syndrome or are a woman with Down syndrome, join us and have fun while connecting with each other . All women are welcome! Bring a friend! Please RSVP no later than September 25th so we can purchase supplies. Thank you!  RSVP HERE

 

Literacy Tutoring

Our fall literacy tutoring program will

begin in October

Open doors for your loved one by opening a book.  Reading leads to better speech, success at school, and opportunities in life.  Take advantage of our literacy program and get your child started reading or improve current reading skills.  Our 6 week summer program will start in October.  

The focus of this program is to provide literacy support and reading instruction to individuals with Down syndrome.  Participants and tutors will be matched based on mutual availability, and will meet once a week for an hour of one-on-one instruction for six weeks.  Tutors will be responsible for creating lesson plans and assessing participants.  The Utica Public Library has resources for tutors to utilize, including an array of leveled readers and the ability to duplicate or laminate materials and make personalized books for participants.  Participants can meet with their tutor at a location and time that works best for their schedule.  

Tutors are required to have a New York State Teacher's Certification.  

 

Any questions? Contact our literacy program coordinator, Heidi McManus by e-mailing her HERE or calling her at 315-735-2279 ext. 220.

 

The 21 Club Presents : The Indium Corporation & Macartney Family Foundation Speaker Series

About

    Dr. Skotko      

A Board-certified medical geneticist, Dr. Skotko is the Emma Campbell Endowed Chair on Down Syndrome at Massachusetts General Hospital.  As the Director of the hospital’s Down Syndrome Program, he has dedicated his professional energies toward children with cognitive and development disabilities. He co-authored the national award-winning books, Common Threads: Celebrating Life with Down Syndrome and Fasten Your Seatbelt: A Crash Course on Down Syndrome for Brothers and Sisters. He is a graduate of Duke University, Harvard Medical School, and Harvard Kennedy School, and he is currently an Associate Professor at Harvard Medical School.  Dr. Skotko is  a leader on clinical and translational research about Down syndrome. He has been featured in The Wall Street Journal, The New York Times, The Washington Post, The L.A. Times, NPR’s “On Point,” and ABC’s “Good Morning America.” Dr. Skotko has a sister with Down syndrome and serves on the Honorary Board of Directors for the Massachusetts Down Syndrome Congress.

 

 

 

Monday, November 18, 2019

 Dr. Brian Skotko 

"Keeping Children and Adolescents With Down Syndrome Healthy: All the Medical Updates Parents Need To know" And "Taking Care of Your Family: Celebrating The Highs And Surviving The Lows"

@ Homewood Suites by Hilton, New Hartford

Hamilton Room

185 Woods Park Drive

Clinton, NY  13323

9:00am - 1pm

Join us Monday, November 18th for a two-part presentation by Dr. Brian Skotko.  In the first part, Dr. Skotko reviews all of the questions and concerns that parents most often have about their sons and daughters with Down syndrome. He provides the answers and action steps, stemming from the latest clinical research on people with Down syndrome. Based on his clinical experience in the Down Syndrome Program at Massachusetts General Hospital, Dr. Skotko makes sure that every parent can anticipate medical conditions so that the potentials of all people with Down syndrome are maximized.

In the second part of our seminar, Dr. Skotko will discuss taking care of your family.  Raising a son or daughter with Down syndrome is a journey full of celebrations–and challenges!  Sue Levine, Brian Skotko, and Rick Goldstein recently published three landmark research papers in the American Journal of Medical Genetics. They surveyed more than 3,000 mothers, fathers, brothers, sisters, and people with Down syndrome nationwide, asking them about family life when someone has Down syndrome. How did families respond? And, what does this research mean for you and your family?  What strategies can your family use to weather the stormy times and value the shining moments.  During this workshop, you will also learn about ways in which family experiences play an important role in informing expectant parents who receive the new prenatal tests for Down syndrome.

 

 

 

Register NOW

The 21 Club thanks the Indium Corporation & Macartney Family Foundation for their sponsorship of our 2019-2020 educational speakers.  Their support makes it possible for us to bring the nation's best experts in topics of Down syndrome right here to Utica, New York for our community to learn from.

Find out more about their work HERE.

The 21 Club Holiday Party

Sunday, December 8, 2019

Delta HotelS By MarRiott, Utica

4:30pm-7:30pm

(Check-In Starts at 4:00pm)

Join us for our annual Holiday Party, December 8, 2019.  This is one of our most fun events of the year.  Enjoy good food, good company, a visit from Santa, presents for the children, giveaways,  and entertainment as well as a DJ and dancing!

Check-In begins at 4:00pm.  The party starts right at 4:30pm.

 

Bring your friends and family for a fun night! R.S.V.P. by November 22nd so we have enough time to buy presents and make preparations for the party. Hope to see you there! $20 for Adults, $10 for Children. People with DS are FREE. For more information, or to receive an invitation e-mail HERE.  Or, register online  HERE.

July 2020

Family Picnic

Join us at 6:00pm in the Donavan Park on Elm Street in Chadwicks for our annual Family Picnic.  This event is FREE for all families, relatives, friends, etc.   The more the merrier!

 

We will have a professional photographer, Bekah Rittenburg,  photographing our families for our annual calendar.  When you arrive at the picnic, sign up for a time to have your family photos taken, go and enjoy the picnic and be sure to come back at your time slot to be photographed. Check out Bekah's work on Facebook

 

If you are able to bring a dish to share with our families, please e-mail Mary Radel what you are bringing so we don't buy anything extra.  All are welcome!  E-mail HERE.

 

You will be able to purchase some Down syndrome awareness merchandise as well as pre-pay and order your calendar for 2020. This event is fun for the whole family! 

(This event is rain or shine- we have the large pavilion

reserved to keep us all dry)

 

 

 

August 15, 2020

Brody's Buddy Ride

Brody’s BUDDY™ Ride is a 63 mile bike ride signifying Trisomy-21.   Down syndrome occurs when there are three copies of the 21st chromosome. Therefore,  21 x 3 to equal 63 miles.  It is here that we feel, 3 copies of the chromosome, as opposed to the typical 2, is better…”More is Better”!  The ride was established to raise awareness for Down syndrome. 

The ride will start and end at Clinton school where parking will be available for bikers.

7:00 AM - Riders check-in
7:15 AM - Opening comments and prayer
7:30 AM - Bike ride begins
1:00-1:30 PM - Bikers arrive back at Clinton Schools

 

 

For more information, go to brodysbuddyride.org.

 

 

E-mail us Here

The 21 Club of CNY, Inc.

PO Box 264​

Washington Mills, NY 13479

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